At the end of August, 10 charities published the findings of a shared workshop they had on the topic of incontinence which had taken place in December 2016. The resulting report which is called “My bladder and bowel own my life.” A collaborative workshop addressing the need for continence research” recommends tackling the stigma of incontinence and funding research into this often ignored issue. This new report describes the impact of continence issues on patients with long-term conditions and older people as discussed by the workshop participants and makes 8 clear recommendations for researchers, research funders, policy makers, commissioners and others in a position to make research into urinary and faecal continence problems more of a priority.
Research into urinary and faecal continence problems have been identified by patients, carers, family members and health and social care professionals as one of the key areas where further research is needed. This is because there are are a lot of areas in this field where further research could be done to improve the quality of life for people with a variety of conditions and circumstances, such as long-term neurological conditions and terminal illness. The 10 charities suggest that more research is needed into:
- the patient experience
- health economics
- clinical research into self-management techniques, co-morbidities, continence assessment and products, the impact of education, combined urinary and bowel continence research, side-effects and the interaction of medication prescribed for other long-term health conditions and their effect on incontinence symptoms.
- fundamental research to better understand bladder and bowel function
- the effect of non-surgical interventions.
Quite a knowledge gap, that needs to be tackled particularly since the NHS estimates that between 3 and 6 million people in the UK have some degree of urinary incontinence. Studies also suggest that in the UK “major faecal incontinence” affects 1.4% of the general population over 40 years old and that constipation affects between 3% and 15% of the population. It’s also widely believed that continence problems are under-reported so these figures could be quite a bit off as the numbers seeking treatment might be as low as 20% of those affected, which would mean around 15 million around a 1/5th of the UK population at any one time may be troubled by poor continence symptoms.
If you are affected by incontinence it is probably a good idea to be aware of NICE’s Topic Page on Urinary Incontinence and their Urinary incontinence in women interactive flowchart and to take some time to look at The Urology Foundation’s Urology Health Pages
In Scotland, the world’s biggest arts festival starts today. As always I’ll spend some time through there over the month and try and take in some shows/events etc. with my family.
So what might be worth seeing that focuses on Older People? Well, these aren’t my recommendations this list comes from Luminate, Scotland’s creative ageing organisation, which runs a diverse programme of creative events and activities throughout the year. So they know better than me what to see. So here is their list of recommendations.
What to See in Edinburgh 2018
I’m intrigued by one in particular… Who Do You Want to Wipe Your Bum?
Which features Dr Anna Schneider of Edinburgh Napier University highlighting a few things worth thinking about; considering you’ve got an 80% chance of needing care at the end of your life.
I suspect she will have to say something about this Global Health Workforce Labor Market Projections for 2030
So this week I am at the British Society of Gerontology (BSG) Conference 2018. I don’t think that I have ever been to a larger Conference and there is so much in the Conference Programme that it is almost big enough to require a wheelbarrow!
Anyway, later today I am speaking with Becky Moran the Care Home Educational Facilitator (CHEF) from NHS Lanarkshire talking about the BSG study day we held back in August 2017. See This Link for our report to Ageing Issues
At the conference the following has been announced that other people might be interested in.
Firstly, the Centre for Better Ageing at https://www.ageing-better.org.uk/ is releasing a new report today called Home Adaptations: A Typical Journey, which explores personal and professional perspectives on home adaptations. Go to the website and download it.
Secondly, Ageing and Society have released some full-text versions of some of its most interesting articles online. There are a range of topics so if you want to take a look at what is available see www.cambridge.org/ASO-BSG18
Finally, the Centre for Policy on Ageing has pooled together some of its Information Resources. An interesting one to look at is called “Policies on Ageing” which is an online resource providing easy access to government policy documents and key national reports and briefings that are raising the profile of issues around the support of older people and an ageing population. See:
Hope you find something interesting.
New recommendations to help healthcare professionals recognise and assess levels of pain in older people were published this week in the scientific journal Age and Ageing. The guidelines were developed by the British Geriatrics Society, the British Pain Society, the Royal College of Nursing, in collaboration with researchers at Teesside University, Anglia Ruskin University, University of Bournemouth, Centre for Ageing Better, and the Centre for Positive Ageing. So with all that collaboration, they ought to be good.
When you look at what they are called that view doesn’t change. “The Assessment of Pain in Older People: UK National Guidelines” so I guess they are serious about the need to use them, so they have also made them freely available on the page, not as a download. So time to get reading but be warned they are 70 plus pages long.
It’s worth remembering what Professor Patricia Schofield, the lead contributor to the paper, said on its release
‘Pain in the older population has been largely neglected with the assumption made that it is expected as you get older. This document sets out guidelines for the fundamental first step in the process, which is how we identify and measure pain in this population. Hopefully health and social care professionals will take on board the recommendations and we can move towards more effective pain management in the future.’
This little video gives you a few reasons for getting familiar with the guidance and more to think about.
People lose an estimated £10bn to fraud every year. People of all ages and backgrounds are victims. However, older people are over- represented as victims of particular frauds, including pension and investment scams, postal scams, doorstep scams and telephone scams. Some older people are especially at risk, either because they are deliberately targeted or because they are vulnerable, for example if they are bereaved, lonely or living with dementia. The financial and health impacts can be devastating. Consider for example that people defrauded in their own homes are 2.5 times more likely to either die or go into residential care within a year.
OK, so I have made my point, but why has this come to my attention this week. Age UK and Action Fraud
(who are the UK’s National Fraud and Cyber Crime Reporting centre), have joined forces to launch new pilot programme to combat scams targeting older Londoners. The new programme will initially be piloted in London with the aim of creating a prevention model that can be rolled out nationally. The programme aims to support older victims, and raise awareness of scams more widely to help empower older people to feel more confident at spotting and avoiding scams.
So I am not living anywhere near London. I am disappointed there is only one pilot site but happy that at least something is being done and thought, ‘I could do my bit to raise awareness particularly given the health consequences of being scammed.’ You can find out more about these from a great little Age UK booklet called “Older People Frauds and Scams” which you can download HERE,
it was released in October 2017.
There is also a video accompanying the new programme which you can access on this Age UK News page
Now all this information is no good just posted here so if you read this far, please share this with the people you know who will benefit. (That’s just about everyone!)
A strange piece of augury last week picking a ‘Care home for 4 year-olds’ as my topic. Today a report by the group United for all Ages warns that there is a widening gap between older and younger generations, largely fuelled by the UK housing crisis, which has forced young people to live in cheaper urban areas, while their parents and grandparents live in the suburbs or the countryside. They say that urgent action is needed to create 500 shared sites across the country by 2022 to try and end ‘age apartheid’ in Britain.
Britain is one of the most age-segregated countries in the world, particularly for the oldest and youngest generations and age segregation has been growing in recent decades
Their report called Mixing Matters was published today (5 January 2018). Worth downloading and reading (even the News Release) to get an idea just how divided a society we are becoming.
Shared sites, such as care-home nurseries (as featured on Channel 4); opening up sheltered housing schemes to students in return for volunteering and support; expanding the Homeshare scheme where older people let spare rooms to young people in return for practical support and companionship; Locating reception and year one classes for primary school children in care homes, as demonstrated by shared sites in the USA; and tackling the stigma around ageism and dementia by encouraging school pupils to visit care homes as part of the national curriculum bring young and old together and are practical methods for tackling some of the big social ills facing our country – from poor health and care and loneliness to ageism and division.
What’s not to like about this!
Firstly a Very Merry Christmas to everyone who reads this that celebrates. If you don’t, hope you are enjoying the winter solstice which is a much older festival and was celebrated more widely (Stonehenge for example is aligned to sunrise on the winter solstice).
So after a few weeks of mainly single topics this week I have decided to be a bit more eclectic!
Firtly, its good to see that Age UK have just launched a new resource which offers practical advice on providing the kind of services in which older lesbian, gay, bisexual or transgender (LGBT) people can feel safe to be themselves. Called the Safe to be me resource guide, it has been written for anyone working or volunteering in health, social care or the voluntary sector who supports older people who are LGBT. It will also prove useful for people involved in training because it encourages them integrate discussions and scenarios relating to the needs of people who are LGBT into what they provide.
Secondly another of these great papers which tells you more about the things you take for granted. This time its about the healing power of music! An easy thing to say and something we are all probably aware of BUT what is music actually doing?
Well this paper from a team based at the University of Helsinki in Finland has a go at answering that question for people with neurological conditions. It is a literature review that looks at music’s potential for aiding the rehabilitation of people with various neurological conditions. Evidence of an impact is greatest for stroke and dementia, but music-based interventions can also help cognition, motor function and emotional well-being in people with Parkinson’s disease, epilepsy and multiple sclerosis. More of their findings can be found HERE
Finally and totally unrelated to anything above, I found an open access literature review on appropriate ways to measure lying and standing blood pressure in hospital for frail older adults. So for all of you concerned about older people who fall frequently possibly because of postural hypertension here is a guide to the:
Measurement of lying and standing blood pressure in hospital
Can we have more open access article like this RCNi?